Families of SMA strives to create a world where SMA is treatable and curable.
FSMA funds research, support programs, patient care, education for health care professionals and enlisting of government support.

 

The Cause - Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is a neuromuscular disease that impacts 1 in 6,000 children. At present there is no known cure, only hope.

SMA is particularly troubling because it impacts children (SMA is the number one genetic killer of young kids).

FSMA's Goal

To Cure SMA.

FSMA's Journey

1) Learn to Care for those impacted - focus through 2007

2) Slow the effects (with existing medicines) - current focus

3) Stop it from progressing once diagnosed (requires new medicines) - future - Need Help!

4) Discover a Cure that reverses the effects - the end goal

How you can help...

Support our 10/15 SMA fundraising event, Hoop, Walk and Roll by registering and getting sponsored for your efforts.

Encourage your local legislator to support the SMA Treatment Acceleration Act.

Donate to Families of SMA

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